Hello my friends,
We are involved in
the early stages of some new and exciting research work being conducted by MAPS
and doctors at the Harvard Medical School. We are not personally affiliated
with either organization but are involved in this particular project. This new
research is involved with finding new medications specifically directed towards
the treatment of cluster headaches, as a first order of business. As most of
you will be aware, most if not all medications currently used by cluster
sufferers are ones specifically designed for the treatment of other medical
conditions, such as migraine headaches. This research will go directly toward
finding "cluster specific" medications, rather than borrowing something
designed for other ailments and used as a "just try this, it works for them,"
medication.
We need your help with one of the early stages of the
research project. We need participants to take the time to fill out a survey to
assess the "Impact on Quality of Life" that cluster headaches have upon
you and those around you. This information is imperative to any future
research. You can make a difference in the future treatment of cluster headache
sufferers. If you've ever thought that you'd like to tell someone exactly how
your life has been impacted over the years, and have them not only listen, but
have it make a difference, this will be your chance.
Please go to the
following link to complete and submit your survey. It is a quite lengthy survey
but all information you are able to provide will be of great benefit to this
project and others to follow.
Part one of the survey is currently available
at:
http://www.clusterbusters.com/phpsurveyor/index.php?sid=2
Part
2 is here:
http://www.clusterbusters.com/phpsurveyor/index.php?sid=3
If
you prefer to remain annonymous and not use your present email address, please
go to hotmail or yahoo or any of the other free email services and get an
address strictly for this purpose. This information and your identity will not
be used for any spam or future mailings that do not pertain directly to this
survey. There will soon be a "part 2" and we will email you the information as
soon as it is available.
Also, if you know of any cluster sufferers
that may not see this, please pass along the information and ask them to help
out. If you are a member of any other support groups or List-Serv's that
include anyone with clusters, please pass this information along to the group.
The more people we have, the better the information will be and the bigger the
impact of the survey. This information is a vital piece of the puzzle that must
make it's way through all the different governmental agencies to allow this
research to not only continue, but flourish.
With your help, we WILL
make a difference.
Thank you,
Mr. Floyd